7/18/2024 Being Prepared but Never ReadyI’ll start with the sad news so that it’s not lingering out there. My 13-year-old…
Grief, Guilt, and GratitudeIf I’d given it any thought ahead of time – before the anticipatory grief and…
Normal Broken: The book I didn’t know I neededHow can something so universal also be so utterly isolating? That’s the paradox of grief.…
The Endurance We Didn't ChooseBefore Lucas was born, before he was diagnosed with two rare diseases, and before he…
A Framework for Medical Decision-Making when a Cure is Not PossibleThis post is my first attempt at distilling into words the medical decision-making framework my…
Suspended Animation: Journaling to Move, Writing to Heal“Our world as we knew it ended 45 days ago with our daughter’s diagnosis. And…
Finding HOME in the NICU and the Heart Our son Sage was born healthy, or so we believed. There were no pre-determined problems…
