Pathways

This Pathway will help you:

• Understanding why the possibility of a tracheostomy is being raised for a child
• Consider the benefits, risks and options
• Prepare for what surgery and life at home with a trach will look like

     

This pathway will help you help you:

• consider what you want in advance for your child's end of life
• consider memory making
• consider what to expect during and after your child's end-of-life
• support the other children.

This pathway will help you:

• Understand the sibling experience
• Hear and See the common worries shared by other parents
• Learn about coping strategies and tools others have used to help their other children, the siblings, cope with having a brother or sister with a serious illness.

This pathway will help you:

• consider the sibling experience in the days/weeks before and after the death of their brother or sister
• consider the common worries shared by parents
• consider helpful tools to guide your other children during this difficult time

Guided exploration may help you better understand a particular topic and how you want to address it in your own family’s life. Each Pathway is a short learning experience that mixes in videos, text, blogs and podcasts.

This Spinal Fusion Decision-Making: for Parents pathway will help you:

• Understand how scoliosis may affect your child
• Understand your hopes and concerns and set expectations.
• Explore the surgical options
• Assess perioperative risk factors & set post-op expectations
• Make the decision
• Prepare for post-op and the transition home
• and includes a downloadable Guide to walk you through the decision-making process

This pathway will help you:

• Define anticipatory grief
• Understand the role anticipatory grief has played in the lives of parents like you
• Gain tools to cope with your own anticipatory grief

This pathway will help you

• Understand the concept of baseline and the role it plays in decision making.
• Learn about how understanding baseline, and changes in it, can help you adapt your care goals and choices to achieve those goals.

This pathway will help you:

• Understand that grief is an individual process; no two people experience it the same way.
• Appreciate that grief is ongoing. It does not have a timeline.
• Recognize that seeking support for your grief whether from professionals, friends, a spouse or other parents is important.
• Recognize how the loss of a child shifts your identity as a parent.
• Begin exploring the concept of personal transformation from grief.