Issues of Control
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A neurologist acknowledges the frustration parents feel that doctors can't always figure it out. Medicine is a human endeavor.
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A mom on managing anxiety: I have to compartmentalize. It’s hard to be a parent.
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Hard terrain for any human being to navigate: What am I in control of? What is the universe in control of?
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The Role of Medical Orders: A Nurse and Mother Reflect (Vicki, Shaelyn and Katlyn)
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Parenting a medically complex child: Letting go of the PUSH and the expectations.
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How is this my life?
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What if something happens to one of us, the healthy ones?
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When people feel out of control, they respond differently.
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The lack of diagnosis frustrates me. I’m a planner. For him, he couldn’t care less.
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Everyone has their stuff.
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Control is a huge factor at every level in the situation.
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Caring for the child allows parents to feel pride and a sense of control.
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I get control by being open about her situation.
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Being with my baby makes me feel better.
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SW: Guilt is natural
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