2/19/2024 Diplomas and DiseasesIt’s a normal weekday morning and I’m in my white Toyota Sienna minivan at a…
Grief, Guilt, and GratitudeIf I’d given it any thought ahead of time – before the anticipatory grief and…
What Survivor’s Guilt Looks Like in Rare DiseaseIn 2015, Courageous Mom, Melissa Hogan published a blog with The Mighty exploring her son…
Making Informed Decisions about Our Daughter's End of Life Throughout our daughter’s short six and half years with us, my husband and I had…
Considering Respite and Long-Term Care for Children with Medical ComplexityParents demonstrate love in many ways, including ways that I am sure they would not…
The Question: So, how many kids do you have?For those of us who have lost a child, for the newly bereaved parent, there…
Embracing the Emotions: A Sibling's StoryMy name is Noah Siedman and I have been an older brother to two siblings…
