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Events

January 23, 2025 at 8:00 PM ET
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Supporting and Celebrating the Siblings

From the time that their sibling is diagnosed with a serious illness, the other children will need support. As the family dynamic shifts, ne...

February 27, 2025 at 8:00 PM ET
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Being My Child's Protector, Advocate, and Decision-Maker in the NICU

Anticipating the birth of a child can be one of the happiest times for parents. But when babies have life-threatening medical issues and beg...

Past Events

December 4, 2024 8:00 pm

Grief Across the Caregiving Trajectory

Grief Across the Caregiving Trajectory

October 24, 2024 8:00 pm

Seeking Wisdom: Navigating Decisions on Behalf of a Child with SNI

Seeking Wisdom: Navigating Decisions on Behalf of a Child with SNI

September 19, 2024 8:00 pm

This Shared Journey: Get to Know the Network

This Shared Journey: Get to Know the Network

August 22, 2024 8:00 pm

Let’s Make Caregiving a Bit Easier

Let’s Make Caregiving a Bit Easier

June 6, 2024 8:00 pm

What If I Regret This Decision?

What If I Regret This Decision?

May 14, 2024 8:00 pm

Book Talk with Jessica Fein - Breath Taking: A Memoir of Family, Dreams, and Broken Genes

Book Talk with Jessica Fein - Breath Taking: A Memoir of Family, Dreams, and Broken Genes

May 6, 2024 3:00 pm

Two Tools for Providers of Children with Severe Neurological Impairment

Two Tools for Providers of Children with Severe Neurological Impairment

April 11, 2024 8:00 pm

Discover the Power of Children’s Books to Help Young People Understand Death and Loss

Discover the Power of Children’s Books to Help Young People Understand Death and Loss

April 1, 2024 8:00 pm

Book Talk with Myra Sack – Fifty-Seven Fridays

Book Talk with Myra Sack – Fifty-Seven Fridays

March 19, 2024 8:00 pm

Do you want to work? Do you have to work? How do you caregive and work?

Do you want to work? Do you have to work? How do you caregive and work?

February 22, 2024 8:00 pm

Caregivers, Get Acquainted With NeuroJourney

Caregivers, Get Acquainted With NeuroJourney

January 8, 2024 3:00 pm

Learn About NeuroJourney.org

Learn About NeuroJourney.org

November 20, 2023 8:00 pm

More Than We Expected: A Conversation with Father and Author James Robinson

More Than We Expected: A Conversation with Father and Author James Robinson

November 8, 2023 8:00 pm

Grounding and Tips to Support a Child’s Understanding of a Serious Diagnosis (in themselves, a sibling, a classmate etc.)

Grounding and Tips to Support a Child’s Understanding of a Serious Diagnosis (in themselves, a sibling, a classmate etc.)

October 26, 2023 8:00 pm

Normal Broken, A Conversation with Mom and Author Kelly Cervantes

Normal Broken, A Conversation with Mom and Author Kelly Cervantes

September 26, 2023 8:00 pm

When it’s harder than it should be: Navigating the emotional toll of your child’s feeding challenges

When it’s harder than it should be: Navigating the emotional toll of your child’s feeding challenges

July 18, 2023 8:00 pm

Be Your Own Best Ally: Self-compassion as a Technique to Fend Off Stress and Burnout and Build Your Capacity to Keep on With the Caring

Be Your Own Best Ally: Self-compassion as a Technique to Fend Off Stress and Burnout and Build Your Capacity to Keep on With the Caring

June 20, 2023 8:00 pm

"Shared Decision-Making" - What Does This Actually Mean and What Does It Look Like?

"Shared Decision-Making" - What Does This Actually Mean and What Does It Look Like?

May 17, 2023 7:30 pm

Storytelling

Storytelling

April 12, 2023 8:00 pm

Understanding and Addressing Pediatric Medical Trauma

Understanding and Addressing Pediatric Medical Trauma

March 21, 2023 8:00 pm

Grieving in Relation to Others

Grieving in Relation to Others

February 15, 2023 8:00 pm

Dyadic Coping: Managing Caregiving Stress as a Couple

Dyadic Coping: Managing Caregiving Stress as a Couple

January 18, 2023 8:00 pm

I Need a Break!

I Need a Break!

December 8, 2022 4:00 pm

2022 Courageous Provider Awards Ceremony

2022 Courageous Provider Awards Ceremony

November 7, 2022 8:00 pm

Does spirituality and/or religion help?

Does spirituality and/or religion help?

October 24, 2022 8:00 pm

Talking to and Supporting the Siblings about Illness, Death and Grief

Talking to and Supporting the Siblings about Illness, Death and Grief

October 19, 2022 6:00 pm

Diagnosis: Parenting - A Chronic Condition

Diagnosis: Parenting - A Chronic Condition

September 14, 2022 8:00 pm

What It Means to "Just Show Up."

What It Means to "Just Show Up."

June 15, 2022 8:00 pm

Traveling with a Medically Complex Child

Traveling with a Medically Complex Child

June 2, 2022 8:00 pm

A screening of Unseen: How We are Failing Parent Caregivers and Why it Matters

A screening of Unseen: How We are Failing Parent Caregivers and Why it Matters

May 19, 2022 8:00 pm

Financial Planning for Parents of Fully Dependent Children

Financial Planning for Parents of Fully Dependent Children

April 28, 2022 8:00 pm

Continuing the Family Bonds and Honoring the Child’s Legacy

Continuing the Family Bonds and Honoring the Child’s Legacy

March 30, 2022 8:00 pm

When the Child is a Twin

When the Child is a Twin

February 17, 2022 2:00 pm

The primary care pediatrician: quarterback of your child’s care team?

The primary care pediatrician: quarterback of your child’s care team?

February 3, 2022 3:00 pm

Bring Your Phone and Bundle Up!

Bring Your Phone and Bundle Up!

January 27, 2022 8:00 pm

Operating a mini ICU; Providing 24/7 Care in the Home

Operating a mini ICU; Providing 24/7 Care in the Home

December 15, 2021 4:00 pm

COURAGEOUS PROVIDER AWARD Ceremony 2021: What I Learned On This Journey With You

COURAGEOUS PROVIDER AWARD Ceremony 2021: What I Learned On This Journey With You

October 27, 2021 8:00 pm

IN THE ROOM: Where Do We Fit In? The Extended Family Experience

IN THE ROOM: Where Do We Fit In? The Extended Family Experience

September 23, 2021 8:00 pm

IN THE ROOM: Putting the Self Back in Care

IN THE ROOM: Putting the Self Back in Care

August 24, 2021 8:00 pm

IN THE ROOM: Dispelling the myths and embracing the truths of Palliative Care, Concurrent Care and Hospice Care

IN THE ROOM: Dispelling the myths and embracing the truths of Palliative Care, Concurrent Care and Hospice Care

June 29, 2021 12:00 am

IN THE ROOM: Being the Dad

IN THE ROOM: Being the Dad

April 28, 2021 8:00 pm

IN THE ROOM: Pregnancy After Child Loss

IN THE ROOM: Pregnancy After Child Loss

March 13, 2021 8:00 pm

IN THE ROOM: Transitioning to Adulthood for the Fully-Dependent Child

IN THE ROOM: Transitioning to Adulthood for the Fully-Dependent Child

February 25, 2021 7:00 pm

IN THE ROOM: The Couple Relationship Matters too!

IN THE ROOM: The Couple Relationship Matters too!

November 18, 2020 12:00 am

IN THE ROOM: What does a good day look like?

IN THE ROOM: What does a good day look like?

October 29, 2020 12:00 pm

IN THE ROOM: Considering Tracheostomy, With or Without Home Ventilation

IN THE ROOM: Considering Tracheostomy, With or Without Home Ventilation

September 28, 2020 12:00 am

IN THE ROOM: Should we try again?

IN THE ROOM: Should we try again?

August 19, 2020 4:00 pm

IN THE ROOM: Go Ahead and Ask - An honest discussion about end of life

IN THE ROOM: Go Ahead and Ask - An honest discussion about end of life

July 22, 2020 3:00 pm

IN THE ROOM: A Good Parent

IN THE ROOM: A Good Parent

May 25, 2020 7:00 pm

IN THE ROOM: Moving through Anticipatory Grief

IN THE ROOM: Moving through Anticipatory Grief

March 3, 2020 3:00 pm

IN THE ROOM: Grief as a Superpower

IN THE ROOM: Grief as a Superpower

January 27, 2020 8:00 pm

IN THE ROOM: What Siblings Want

IN THE ROOM: What Siblings Want