Events

August 22, 2024, 8:00 PM ET

Let’s Make Caregiving a Bit Easier

Finding resources and organizing information are two common struggles for many parents in our Network. But g...

September 19, 2024, 8:00 PM ET

This Shared Journey: Get to Know the Network

Come meet the faces BEHIND Courageous Parents Network, as well as some of the parents and providers IN the Network. (That includes you, btw....

October 24, 2024, 8:00 PM ET

Balancing Knowledge with Wisdom while Navigating Life with a Child with a Serious Neurological Condition

Neurological diseases are often complex, and life, including decision-making, can be hard to navigate in the face of uncertainty about how t...

November 7, 2024, 8:00 PM ET

Grief Across the Caregiving Trajectory

Grief is naturally a parent’s constant companion, from diagnosis – or lack thereof – onwards, including into bereavement. Psychologist Wendy...

Past Events

June 6, 2024 8:00 pm

What If I Regret This Decision?

May 14, 2024 8:00 pm

Book Talk with Jessica Fein - Breath Taking: A Memoir of Family, Dreams, and Broken Genes

May 6, 2024 3:00 pm

Two Tools for Providers of Children with Severe Neurological Impairment

April 11, 2024 8:00 pm

Discover the Power of Children’s Books to Help Young People Understand Death and Loss

April 1, 2024 8:00 pm

Book Talk with Myra Sack – Fifty-Seven Fridays

March 19, 2024 8:00 pm

Do you want to work? Do you have to work? How do you caregive and work?

February 22, 2024 8:00 pm

Caregivers, Get Acquainted With NeuroJourney

January 8, 2024 3:00 pm

Learn About NeuroJourney.org

November 20, 2023 8:00 pm

More Than We Expected: A Conversation with Father and Author James Robinson

November 8, 2023 8:00 pm

Grounding and Tips to Support a Child’s Understanding of a Serious Diagnosis (in themselves, a sibling, a classmate etc.)

October 26, 2023 8:00 pm

Normal Broken, A Conversation with Mom and Author Kelly Cervantes

September 26, 2023 8:00 pm

When it’s harder than it should be: Navigating the emotional toll of your child’s feeding challenges

July 18, 2023 8:00 pm

Be Your Own Best Ally: Self-compassion as a Technique to Fend Off Stress and Burnout and Build Your Capacity to Keep on With the Caring

June 20, 2023 8:00 pm

"Shared Decision-Making" - What Does This Actually Mean and What Does It Look Like?

May 17, 2023 7:30 pm

Storytelling

April 12, 2023 8:00 pm

Understanding and Addressing Pediatric Medical Trauma

March 21, 2023 8:00 pm

Grieving in Relation to Others

February 15, 2023 8:00 pm

Dyadic Coping: Managing Caregiving Stress as a Couple

January 18, 2023 8:00 pm

I Need a Break!

December 8, 2022 4:00 pm

2022 Courageous Provider Awards Ceremony

November 7, 2022 8:00 pm

Does spirituality and/or religion help?

October 24, 2022 8:00 pm

Talking to and Supporting the Siblings about Illness, Death and Grief

October 19, 2022 6:00 pm

Diagnosis: Parenting - A Chronic Condition

September 14, 2022 8:00 pm

What It Means to "Just Show Up."

June 15, 2022 8:00 pm

Traveling with a Medically Complex Child

June 2, 2022 8:00 pm

A screening of Unseen: How We are Failing Parent Caregivers and Why it Matters

May 19, 2022 8:00 pm

Financial Planning for Parents of Fully Dependent Children

April 28, 2022 8:00 pm

Continuing the Family Bonds and Honoring the Child’s Legacy

March 30, 2022 8:00 pm

When the Child is a Twin

February 17, 2022 2:00 pm

The primary care pediatrician: quarterback of your child’s care team?

February 3, 2022 3:00 pm

Bring Your Phone and Bundle Up!

January 27, 2022 8:00 pm

Operating a mini ICU; Providing 24/7 Care in the Home

December 15, 2021 4:00 pm

COURAGEOUS PROVIDER AWARD Ceremony 2021: What I Learned On This Journey With You

October 27, 2021 8:00 pm

IN THE ROOM: Where Do We Fit In? The Extended Family Experience

September 23, 2021 8:00 pm

IN THE ROOM: Putting the Self Back in Care

August 24, 2021 8:00 pm

IN THE ROOM: Dispelling the myths and embracing the truths of Palliative Care, Concurrent Care and Hospice Care

June 29, 2021 12:00 am

IN THE ROOM: Being the Dad

April 28, 2021 8:00 pm

IN THE ROOM: Pregnancy After Child Loss

March 13, 2021 8:00 pm

IN THE ROOM: Transitioning to Adulthood for the Fully-Dependent Child

February 25, 2021 7:00 pm

IN THE ROOM: The Couple Relationship Matters too!

November 18, 2020 12:00 am

IN THE ROOM: What does a good day look like?

October 29, 2020 12:00 pm

IN THE ROOM: Considering Tracheostomy, With or Without Home Ventilation

September 28, 2020 12:00 am

IN THE ROOM: Should we try again?

August 19, 2020 4:00 pm

IN THE ROOM: Go Ahead and Ask - An honest discussion about end of life

July 22, 2020 3:00 pm

IN THE ROOM: A Good Parent

May 25, 2020 7:00 pm

IN THE ROOM: Moving through Anticipatory Grief

March 3, 2020 3:00 pm

IN THE ROOM: Grief as a Superpower

January 27, 2020 8:00 pm

IN THE ROOM: What Siblings Want