Events

February 27, 2025 at 8:00 PM ET

Being My Child's Protector, Advocate, and Decision-Maker in the NICU

Anticipating the birth of a child can be one of the happiest times for parents. But when babies have life-threatening medical issues and beg...

March 24, 2025 at 8:00 PM ET

Supporting Your Family's Wishes: The Value of Advance Directives and Preparing for Complex Medical Decisions

Please join us to explore how completing healthcare advance directives for/with your child can support your family's goals and wishes. We wi...

April 23, 2025 at 8:00 PM ET

Hear from the Siblings: Sharing Their Journey with Medical Complexity

Join a panel of siblings to gain insights into the fears and worries that siblings carry, the things that helped them (and those that didn’t...

May 15, 2025 at 8:00 PM ET

Building a Path to Support: Navigating the Stages of Financial Planning

This event will help families understand the numerous stages to be considered while developing a special needs master plan for their loved o...

Past Events

January 23, 2025 8:00 pm

Supporting and Celebrating the Siblings

December 4, 2024 8:00 pm

Grief Across the Caregiving Trajectory

October 24, 2024 8:00 pm

Seeking Wisdom: Navigating Decisions on Behalf of a Child with SNI

September 19, 2024 8:00 pm

This Shared Journey: Get to Know the Network

August 22, 2024 8:00 pm

Let’s Make Caregiving a Bit Easier

June 6, 2024 8:00 pm

What If I Regret This Decision?

May 14, 2024 8:00 pm

Book Talk with Jessica Fein - Breath Taking: A Memoir of Family, Dreams, and Broken Genes

May 6, 2024 3:00 pm

Two Tools for Providers of Children with Severe Neurological Impairment

April 11, 2024 8:00 pm

Discover the Power of Children’s Books to Help Young People Understand Death and Loss

April 1, 2024 8:00 pm

Book Talk with Myra Sack – Fifty-Seven Fridays

March 19, 2024 8:00 pm

Do you want to work? Do you have to work? How do you caregive and work?

February 22, 2024 8:00 pm

Caregivers, Get Acquainted With NeuroJourney

January 8, 2024 3:00 pm

Learn About NeuroJourney.org

November 20, 2023 8:00 pm

More Than We Expected: A Conversation with Father and Author James Robinson

November 8, 2023 8:00 pm

Grounding and Tips to Support a Child’s Understanding of a Serious Diagnosis (in themselves, a sibling, a classmate etc.)

October 26, 2023 8:00 pm

Normal Broken, A Conversation with Mom and Author Kelly Cervantes

September 26, 2023 8:00 pm

When it’s harder than it should be: Navigating the emotional toll of your child’s feeding challenges

July 18, 2023 8:00 pm

Be Your Own Best Ally: Self-compassion as a Technique to Fend Off Stress and Burnout and Build Your Capacity to Keep on With the Caring

June 20, 2023 8:00 pm

"Shared Decision-Making" - What Does This Actually Mean and What Does It Look Like?

May 17, 2023 7:30 pm

Storytelling

April 12, 2023 8:00 pm

Understanding and Addressing Pediatric Medical Trauma

March 21, 2023 8:00 pm

Grieving in Relation to Others

February 15, 2023 8:00 pm

Dyadic Coping: Managing Caregiving Stress as a Couple

January 18, 2023 8:00 pm

I Need a Break!

December 8, 2022 4:00 pm

2022 Courageous Provider Awards Ceremony

November 7, 2022 8:00 pm

Does spirituality and/or religion help?

October 24, 2022 8:00 pm

Talking to and Supporting the Siblings about Illness, Death and Grief

October 19, 2022 6:00 pm

Diagnosis: Parenting - A Chronic Condition

September 14, 2022 8:00 pm

What It Means to "Just Show Up."

June 15, 2022 8:00 pm

Traveling with a Medically Complex Child

June 2, 2022 8:00 pm

A screening of Unseen: How We are Failing Parent Caregivers and Why it Matters

May 19, 2022 8:00 pm

Financial Planning for Parents of Fully Dependent Children

April 28, 2022 8:00 pm

Continuing the Family Bonds and Honoring the Child’s Legacy

March 30, 2022 8:00 pm

When the Child is a Twin

February 17, 2022 2:00 pm

The primary care pediatrician: quarterback of your child’s care team?

February 3, 2022 3:00 pm

Bring Your Phone and Bundle Up!

January 27, 2022 8:00 pm

Operating a mini ICU; Providing 24/7 Care in the Home

December 15, 2021 4:00 pm

COURAGEOUS PROVIDER AWARD Ceremony 2021: What I Learned On This Journey With You

October 27, 2021 8:00 pm

IN THE ROOM: Where Do We Fit In? The Extended Family Experience

September 23, 2021 8:00 pm

IN THE ROOM: Putting the Self Back in Care

August 24, 2021 8:00 pm

IN THE ROOM: Dispelling the myths and embracing the truths of Palliative Care, Concurrent Care and Hospice Care

June 29, 2021 12:00 am

IN THE ROOM: Being the Dad

April 28, 2021 8:00 pm

IN THE ROOM: Pregnancy After Child Loss

March 13, 2021 8:00 pm

IN THE ROOM: Transitioning to Adulthood for the Fully-Dependent Child

February 25, 2021 7:00 pm

IN THE ROOM: The Couple Relationship Matters too!

November 18, 2020 12:00 am

IN THE ROOM: What does a good day look like?

October 29, 2020 12:00 pm

IN THE ROOM: Considering Tracheostomy, With or Without Home Ventilation

September 28, 2020 12:00 am

IN THE ROOM: Should we try again?

August 19, 2020 4:00 pm

IN THE ROOM: Go Ahead and Ask - An honest discussion about end of life

July 22, 2020 3:00 pm

IN THE ROOM: A Good Parent

May 25, 2020 7:00 pm

IN THE ROOM: Moving through Anticipatory Grief

March 3, 2020 3:00 pm

IN THE ROOM: Grief as a Superpower

January 27, 2020 8:00 pm

IN THE ROOM: What Siblings Want