Event

A Lifetime of Moments: Building Memories and Living your Child's Legacy Together

September 22, 2025 at 8:00 PM ET

Time together making memories as a family may feel especially precious when the child is living with a life-threatening medical condition. Making memories and sharing experiences that become part of the child’s legacy and the family’s treasure box can take many forms and can happen anytime: special occasions or a typical weekday.

There is meaning and legacy in experiences together; there is meaning and legacy in the concrete items that emerge from these experiences, such as photos, art, handprints, music.

Join researcher and Child-Life Specialist Dr. Jessica Boles and Soulumination’s McKenzie Johnson to learn about processes of making memories and building legacy that endure in your home and your heart.

This event will take place on Monday, September 22^nd at 8:00 pm ET (7:00 pm CT, 6:00 pm MT, 5:00 pm PT).

Our Panel

Jessika Boles, PhD, CCLS

Jessika is an Assistant Professor of Practice in Psychology and Human Development at Vanderbilt University in Nashville, Tennessee, and a Certified Child Life Specialist at Monroe Carell Jr. Children’s Hospital Vanderbilt. Jessika leads the Children’s Healthcare, Illness, Legacy, and Loss (CHILL) Lab at Vanderbilt and is the Executive Director of the Child Life Academic Society. She has spent more than fifteen years supporting children with chronic and complex medical needs and their families in and outside of the hospital setting, and is passionate about helping families grow and cope together.

McKenzie Johnson, Executive Director

McKenzie comes from a professional fundraising and business management background. She has been a caretaker for her mother through cancer treatments, loves her nephews, and spends her free time climbing mountains.