Event
Traveling with a Medically Complex Child
June 15, 2022 at 8:00 PM ET
Watch an archived recording of this event
Traveling with a child with medical complexity can be challenging. But with a bit of extra planning, it is certainly doable! Join CPN, our partners at Brades’ Place and a panel of parents to learn tips and tricks to create your own roadmap to a memorable family experience. Learn about:
- Choosing a destination that works for your family
- Documents to prepare and take (many templates included)
- Packing dos and don’ts
- Tackling airline and car travel
Our Panel
Rebecca R Oakley, FNP-C, APRN, Executive Director Brades' Place
Becky has dedicated her life and nursing career to caring for children with life-changing diagnoses and disabilities. Becky adores her 7 children, who inspire her daily. Brades’ Place is named after her medically complex son, Brady, who taught her that children with unique traits do amazing things every day. Becky brings experience as a parent and as a medical provider for medically complex children. She draws on both experiences to improve the lives of her patients and their families.
Elizabeth Schuster
Elizabeth Schuster is a wife and mother to three children. Her youngest daughter had a rare terminal neurological disease that caused severe disabilities and medical complications. Elizabeth and her husband have always been passionate about travel, both domestic and international, and continued that tradition with all three of their children. Elizabeth works as a disabilities specialist with college students and she advocates for accessible study abroad opportunities.
Irene Jakubiak
With a motto "never lose hope," Irene and Chris are parents to 16 year old son Reilly who has a rare regressive gene mutation KCTD7. We love to travel and make memories. Life is short tomorrow isn’t promised. Irene is Reilly’s primary caregiver and does remote school and therapy with him. Chris works for the local power company and a volunteer fireman. They both are EMT. Learn about their advocacy efforts on Facebook @Rally4Reilly.
Candace Baier
Candace has been a flight attendant for a major airline for 17 years. She has 2 children. Emma is 13 years old and Harper is 11 years old. Harper has Ohtahara Syndrome, a rare, progressive form of Epilepsy. He is wheelchair bound, non verbal, GJ fed, and has other medical challenges. Despite these challenges, their favorite hobby as a family is to travel as much as they can.
