2/13/2024 A Rare FriendshipMy friend Liz lives ten miles north of me. The journey between our homes can…
A Lifelong Train RideHaving a child with a rare progressive disease is like a lifelong train ride... Every…
Parents considering a clinical trial for their child are courageous indeed.When my daughter Cameron and nephew Hayden were diagnosed with infantile Tay-Sachs in 1999, there…
Is Your Pediatrician On-Board?Mercifully, serious illness in children is rare. But it happens. If you’re reading this post,…
It's Father's Day and I am Ethan's DadI find myself occasionally thinking about how I would describe myself to others. What would…
