1/6/2021 What Do Parents Value Regarding Pediatric Palliative and Hospice Care in the Home Setting?Summary of survey results published in the Journal of Pain and Symptom Management Jackelyn Y.…
Rare Disease Day: Treatment--Even Cure--Is Necessary, but Not SufficientBy Blyth, Jennifer, Kerri We are three moms whose children died from relatively rare pediatric…
E pluribus unum, one out of many - advocating for all. Powered by my child to Advocate for Families Now: My testimony in support of S1138…
Providers focus on the child and family experience. In March, I attended a workshop hosted by the National Cancer Policy…
Pediatric Palliative Care is a Social Issue Courageous Parents Network hosted Dr. Joanne Wolfe, MD, MPH—Director of Pediatric Palliative Care…
Pediatric Palliative Care in The Wall Street JournalPart of the mission of Courageous Parents Network is to spread awareness and education about…