For Dads
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In the Room Event: A Panel Conversation on Being the Dad
The role that a dad can play in advocacy: “We have to create an avenue for dads.”
“We were trying to prepare her for becoming her own advocate. You need to be forthright.”
I was worried about the empty crib.
I was drowning in grief but trying to avoid it.
A MD and a father on the generalizations society & clinicians make about mothers vs fathers as caregivers.
Letting God lead: When something like this happens, you question why me? Why us? I ask “please help guide me, show me what it is you need me to do.”
Finding Support: My brother can help me get through this.
A bereaved father on the pressure parents feel to be changed to perfect.
You have to take time for yourself and your relationship.
Mom wants to know what it’s going to be like; Dad doesn’t until he gets there.
Don’t try to fix it. You don’t have to do it all in one day.
Twin brothers and fathers, Tay-Sachs, bereavement, and their children’s legacy
The division of labor is really important.
It was a big disconnect.
I’m like, I don’t need a bucket list right now.
Elizabeth likes to talk things out. It’s not my first preference.
Creating a safe place for each person to express their feelings.
Don’t hesitate to say, Somebody help us keep it all together.
We go see someone. It’s not marriage therapy. It’s life therapy
Our son’s strength put us in our place as to what our roles were.
The doctor was very gentle and also clear that there was no treatment at this time.
We came to the realization that this is the path we’re walking and there is nothing to be done about that.
"Now I have deep conversations about the burdens people carry."
"I find her in things. Sometimes it hits out of the blue."
We don’t know the end of the story but her story will live on forever.
I choose to look at the bright side of life.
The last hour of Talon's life, and letting go.
