April
April, mother of Jackson.
Jackson had Krabbe Disease.
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“My race does play a role in my need to strive to be overly on top of information. I want to be taken seriously as Jackson’s advocate.”
A diagnosis of Krabbe; and the medical team getting to meet him before his condition progressed.
A mother’s need to get as much information as possible; while the pediatrician may be protecting against too much.
Feeling as a PARENT at home vs Speaking as a professional advocate for my son in the hospital
