Cari
Cari, mother of Dylan (age 11) and Jessie. Jessie had Sanfilippo Syndrome and died at age 13.
1 / 21
CPN's In the Zoom Room: What Siblings Want
Sanfilippo: The road to diagnosis
Our first child's fatal diagnosis, with a new pregnancy at same time.
Our primary care pediatrician was our biggest support.
