Jerris
Father of Faith. Faith had Osteosarcoma with multiple complications.
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Osteosarcoma in an adolescent and ‘Total Pain’: There were all these compounding issues
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“Once you established trust with Faith, and respected her, she would do anything for you.”
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“We had a pinky promise that I would always be very honest with her. I sat on the bed and told her that she was dying.”
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The role that a dad can play in advocacy: “We have to create an avenue for dads.”
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“We were trying to prepare her for becoming her own advocate. You need to be forthright.”
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A palliative care MD: “We need to try to understand what the parent's motivation is; and not shy away from pain.”
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A dad to fellow parents: “Be present, have a voice, trust but validate.”
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“It was a journey of contradictions.” Regrets and no regrets.
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