Matt and Myra
Parents of Havi and Kaia. Kaia is 21 months old and big sister Havi died at age 2 from infantile Tay-Sachs disease.
1 / 14
Becoming parents for the first time: Expanding the Love Bubble
The diagnostic odyssey to Tay-Sachs
Dropping the illusion of control: Shifting from progress to love and play
Evolving as parents: from feeling shocked and vulnerable to trusting intuitions about what our child wants
