Shawna and Mike, parents of Keenan, Kyle, Kashton and Karston. Keenan was born with Microcephaly Capillary Syndrome. Keenan died just before his third birthday. His siblings were born after.
What does a good day look like?
The parents of four children, one of whom passed away from an extremely rare genetic condition known as Microcephaly Capillary Malformation Syndrome, discuss what a good day looks like for them since the passing of their son Keenan. They explain how they have learned to embrace their grief and channel it into the love they share with their other three children.
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What does a good day look like?
Keenan changed lives: including the barber’s.
Loss, Adoption and Twins.
Knowing their brother: We’ll certainly explain everything about Keenan someday.
There were triggers: here we are again in the NICU, day in and day out.
We lived in a bubble, which was a beautiful thing. We could appreciate the little things.
A dad reflects on living in the hospital. We just lived hour to hour.
Shifting expectations: A couple talks about what has helped each of them in early grief.
From the PICU to the Home ICU
Microcephaly Capillary Malformation Syndrome: 13th diagnosis in the world