Life at Home with a Trach
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There is no road map when the diagnosis is so rare.
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Nursing: Sacrificing some control, we had to expand our village.
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Tracheostomy: It’s a big decision. What will be the impact on the family?
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Tracheostomy and Decannulation: Reassessing benefit over time
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A nurse: The hardest part about caring for a child at home with a trach is that it’s 24/7
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We’ve had some scary moments with the trach.
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I did not want to isolate him. He loves school.
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Moving through the initial scariness, you can be trained.
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When he wants to do something, you just want to move heaven and earth.
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I wonder if I project my own feelings on to him.
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You can still find a place for the vent and do fun things.
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He's doing great. He's fantastic, even if his normal is terrible.
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