Shifting Expectations
It’s the three of us, forever.
Parents of a son with multiple progressive disorders, now age 18, talk about their “functional dysfunction” – the sacrifices they have made as a couple and how the only time they can be alone is if they go out of the house.
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Learning to let go of the therapies that weren’t serving him.
There was never a thought in my mind that she would die from this. I called her the Comeback Queen. . . . Then I had to get ready for that day.”
Coming to a place of acceptance, over time. “OK, this is my life now.”
Parenting a Medically Complex Child: Shifting my expectations for his life
Parenting a medically complex child, and finding balance: Not every decision is critical.
Parenting a medically complex child: Letting go of the PUSH and the expectations.