Shifts in Baseline
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A mom on deciding this time NOT to treat. “When its disease progression, forward doesn’t look the same.”
We were so caught up in having a new baby, and having this new life at home with the two of them
This is How We Live: This Thing Called Baseline
A Mom reflects on when quality of life bumped into quantity: We asked, “What are we doing?”
Intractable problems regulated by the CNS: Fix vs Modify. Asking to understand “I can’t make it better.”
The Conversation and Advance Care Planning: “As Baseline moved, we’d make a new plan”
Problems of the CNS: Is this a new acute problem OR a change in Baseline
Problems of the CNS: What are family’s expectations: ‘Fix’ vs Accepting a change in baseline.
Intractable problems and a new Baseline: When the hospital can’t change the outcome
I need his life to be good NOW.
We never held anything back from them.
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From our Blog:
- SEE Childhood Dementia
- You Need This
- Doctors' Words Well Chosen
- A Dose of Courage
- A Safe Haven and a Launching Pad
- A Parent's Narrative of Their Child is the Baseline
- Name It to Tame It
- A Physical Therapist’s Perspective on Shifting Baseline
- Birthdays and Baselines
- How Palliative Care Helps Us Balance Action and Acceptance
- Connecting the Dots