Supporting Siblings
This isn’t happening to them, it’s happening with them.
Parents of a son with Sanfilippo Syndrome talk about how they talked about Ben with his healthy siblings. We tried to help them understand how it was going to impact them. When we had to decide about spinal surgery, we did involve them in the conversation. They were older in their teens and we tried to involve them in issues that changed our family structure.
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What are you most proud of about your two sons?
A little brother with Trisomy 18 and how the siblings cope.
Bereavement: Dr. Breyer on supporting the siblings
Parenting a medically complex child and keeping the adult-age sister involved.
Child life supports siblings.
Parenting a child with severe neurological impairment: Helping the siblings understand the decisions.
Her sharp decline was hardest on her brother. He thought he had more time.
Helping Siblings Cope, From the Parents
Kyla was in grief counseling right off the bat.
I had to teach the teachers about the situation at home.
This isn’t happening to them, it’s happening with them.
If the child is asking the question, it’s because they need to know.