Your Circle Will Change
Navigating Friends
Parents of a baby boy with polymicrogyria talk about where they find support – from a big family and some friends — and what they look for in people with whom they want to connect during these days post diagnosis. “It’s the affinity with grief, and knowing that life is so uncertain.” Mom also shares her ambivalence about merging from the COVID bubble. “As we start getting out and about and have gatherings, there will be a new recurrent confrontation with this reality that Alden is different and all the struggles that go along with that.”
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During his life, and at his service, I didn’t really want to share Jackson a lot with other people.
Navigating Friends
My evolution as a parent: Caring about different things than my peers can make the experience isolating at times
“Where I got support varied depending on the time and situation”
Pros and Cons of Social Media
We both lost friends over this.
At the end of the day, it’s my kid and others can’t take that on.