Genetic Counseling/Family Planning
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A referral to a genetic counselor

Delivering the news of a genetic condition

It is not just about diagnosis. Genetic counselors can have a long term relationship with patients.

Understanding the different types of genetic testing

Genetic testing quickly becomes a family affair

What a genetic counselor wants providers to understand about genetics

Palliative care and genetic counselors meet the family where they are and walk side by side

A genetic counselor reflects on the blessing and burdens of the internet

Genetics: Testing the siblings

How a genetic counselor helps families explore the clinical trial option

Talking to families about the limitations of genetic testing

A diagnosis through newborn screening

Sharing the news of a genetic diagnosis and what it might mean for others in the family.

IVF: Because the diagnosis is so rare we had to fight for insurance coverage.

It’s terrifying thinking about having another child: We know there are sharks in the water.

If we have another child, I think I may have a lot of repeated trauma of dates and times

Should we try again? Family planning after a genetic diagnosis: Zoom with GC Mary Frances Garber.

Parenting a medically complex child, and deciding to have another child.

Discovering I was pregnant and being petrified to find out if the fetus is also affected with MPS.

Genetic Counseling and Pediatric Rare Disease: Advice doesn't exist; being present with the family.

Our first child's fatal diagnosis, with a new pregnancy at same time.

Should we have another child? How a counselor can help.

Pre-Natal Testing: Do you really want to know?

Pediatric Disease: My Genes, My Guilt.

Genetics: Considering the 'odds' of having an affected child.

More Children? It was important to talk to a third party about what we were thinking.

Helping families adjust to the genetic diagnosis.

You don't have to go it alone.

It’s one thing to NOT know you’re a carrier, it’s another thing to know you run the risk.
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Related
From our Blog:
- Section on Hospice and Palliative Medicine - July 2017
- Should we have another child? CPN is offering a Virtual Support Group Series
- Diagnostico Precoz
- The Courage to Screen
- Section on Hospice and Palliative Medicine - July 2017
- Should we have another child? How genetic counseling can help.
- Another Child? A Mom's Odyssey.
- Whose Country is This?