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Core Concepts
The Beginning
Advocating for Your Child
Understanding Interventions
Coping, Family and Relationships
End of Life and Bereavement
Explore
Not sure where to start?
Explore CPN Core Concepts
Learn More
Video Library
Audio Library
Guides
Pathways
Blog
Featured Family
Units
Diagnoses
Events
About
Not sure where to start?
Explore CPN Core Concepts
Learn More
Our Origin
Donors
Annual Report
Parent Champions
Partners
Speaking Engagements
Staff and Board
Mobile App
The Ilene Beal and Margaret S Lindsay Courageous Provider Awards (2024 Announcement)
Contribute a Blog
Collaborations and Co-Authorship in Research
Medical Advisory Board
Talk to CPN
En Español
Clinicians/Educators
NeuroJourney
Mitochondrial Disease Blogs
Why I Work
A Rare Friendship
Words Matter
A therapist’s perspective: Supporting your child with a rare and fatal disease.
Navigating therapies when your child has a rare and fatal disease
Grief, Guilt, and Gratitude
How Food Brought Joy to My Daughter Even When She Could No Longer Eat
If I’d Had a Crystal Ball, What Would I Have Done?
The Nursing Dilemma
Storytelling in Sorrow
Why Show and Tell is Important in the Face of a Devastating Diagnosis: Helping Siblings Understand
Adventure Awaits: Safe Travel Tips from a Seasoned Mom
Grappling with Persistent Obligation
The Strength in Staying
The Ache of Bigger But Not Better
Finding My Antidote to Fear
The Miracle at the Mirror
Calling All Coping Strategies
One
Language that builds a bridge: "Please help me understand"
Creating a Kinship with Grief: Meet One of CPN's New Bloggers in Residence
How Palliative Care Helps Us Balance Action and Acceptance
One nurse asked us, "Does your Rabbi think that she'll recover?"
The Other Side of Innocence
Not Home
An Unexpected Message Six Years Later
Wisdom from Within | Lucy's Light
