Responding to a New Diagnosis
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A diagnosis in-utero of Trisomy 18: Being told, Don’t get too attached. He is going to die. We wanted a different conversation.
A mother’s need to get as much information as possible; while the pediatrician may be protecting against too much.
In the early scary days, with shock of diagnosis, parents don’t register the supportive resources they are handed.
Moving beyond the anger after the death: “At diagnosis and birth, hope and faith took over. I didn’t realize how sick she was.”
